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You might be thinking about the different types of this disease. I haven't read of a single case of an infant with the same condition as Charlie, turning out okay. They were all dead within a year, sadly.
But I am not medical expert. This is just what I have read up on regarding infantile onset encephalomyopathic mitochondrial DNA depletion syndrome.
They had the money months ago, when he was in better condition. His brain damage is more severe by the day. They've been fighting in courts since May to be permitted to spend the money they raised on treatment. I guess they've come so far that they don't want to give up. I read somewhere he had a 10% chance of substantial improvement though, and also it's gone viral and the government wants to backtrack now.
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[–] Kleyno ago
You might be thinking about the different types of this disease. I haven't read of a single case of an infant with the same condition as Charlie, turning out okay. They were all dead within a year, sadly.
But I am not medical expert. This is just what I have read up on regarding infantile onset encephalomyopathic mitochondrial DNA depletion syndrome.
[–] kittysaysmeownow ago
They had the money months ago, when he was in better condition. His brain damage is more severe by the day. They've been fighting in courts since May to be permitted to spend the money they raised on treatment. I guess they've come so far that they don't want to give up. I read somewhere he had a 10% chance of substantial improvement though, and also it's gone viral and the government wants to backtrack now.