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Can you really call it living if you cannot feel alive?
Honest question. Even if this treatment works and his life is extended, I wonder how much of a life that child can look forward to, or even if he has enough of a mind left to look forward to anything. Poor thing.
You might be thinking about the different types of this disease. I haven't read of a single case of an infant with the same condition as Charlie, turning out okay. They were all dead within a year, sadly.
But I am not medical expert. This is just what I have read up on regarding infantile onset encephalomyopathic mitochondrial DNA depletion syndrome.
Perhaps, but the way I see it the kid can at least be used as a guinea pig. They might not be able to save him, but they may learn valuable information about the disease and maybe even the very nature of DNA.
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[–] Kleyno 2 points 1 point 3 points (+3|-2) ago
Can you really call it living if you cannot feel alive?
Honest question. Even if this treatment works and his life is extended, I wonder how much of a life that child can look forward to, or even if he has enough of a mind left to look forward to anything. Poor thing.
[–] sakuramboo 1 point 8 points 9 points (+9|-1) ago
At this point that kid is a political toy and nothing more. That's what's most sad about the situation.
[–] ursaggybutt101 0 points 5 points 5 points (+5|-0) ago
There have been a few other cases with children having the same disease and turning out okay (so far).
[–] Kleyno ago
You might be thinking about the different types of this disease. I haven't read of a single case of an infant with the same condition as Charlie, turning out okay. They were all dead within a year, sadly.
But I am not medical expert. This is just what I have read up on regarding infantile onset encephalomyopathic mitochondrial DNA depletion syndrome.
[–] Shekelstein6M 1 point 4 points 5 points (+5|-1) ago
Perhaps, but the way I see it the kid can at least be used as a guinea pig. They might not be able to save him, but they may learn valuable information about the disease and maybe even the very nature of DNA.
[–] Broc_Lia 1 point 2 points 3 points (+3|-1) ago
That's not your decision to make.
[–] Kleyno 2 points 2 points 4 points (+4|-2) ago
What decision? Where in that entire comment, did I even remotely suggest a decision was being made and that I was going to be the one to make it?