0
17

[–] Fenrirwulf 0 points 17 points (+17|-0) ago 

Also not a question, just an observation. I like that you identified first as a father, shows your priorities are in order. Wish you success.

3
12

[–] Eirene 3 points 12 points (+15|-3) ago 

Not a question, but who cares. You are a decent human being, and I hope your son will grow up the same way. Have a nice day.

0
10

[–] Salicaz [S] 0 points 10 points (+10|-0) ago  (edited ago)

Because I'm trying to raise awareness for the disorder.

Edit: spelling.

0
10

[–] FishWithAMustache 0 points 10 points (+10|-0) ago 

I think you misinterpreted what he meant. I think he meant "who cares it isn't a question" not "who cares about your son"

[–] [deleted] 0 points 7 points (+7|-0) ago 

[Deleted]

0
11

[–] Salicaz [S] 0 points 11 points (+11|-0) ago 

So far he hasn't had anything like that apart from his vaccinations. Fortunately he was able to just have a bandage held for longer.

His main issue will be from toddler age when he will suffer bumps and will have muscle bleeds which he'll need injections at hospital for.

0
6

[–] GabeVitoro 0 points 6 points (+6|-0) ago 

You mentioned your son will suffer muscle bleeds. Is that from growing or from regular muscle regeneration? Will it be a life long issue or just as a kid?

0
6

[–] Salicaz [S] 0 points 6 points (+6|-0) ago 

It's down to a missing clotting factor. So whilst he won't bleed faster, it will take longer to clot. A muscle bleed will occur from a knock or bang, think of a bruise on your leg. His will be much more prominent and even raised.

It's a genetic fault from his mother's side and is life long but manageable. He can't play rugby!

0
2

[–] fagnig 0 points 2 points (+2|-0) ago 

It's a genetic fault from his mother's side and is life long but manageable. He can't play rugby!

This is not one of those smartass comments, but the whole "you can do anything any of the other kids can" thing is a little idealistic when dealing with a disability, as to how dangerously so, that depends on your own parenting/leadership, im not criticizing yours, or you as a person, i just distrust this kind of sentiment. Cotton wool is bad, so is Rugby apparently...

0
5

[–] Trumpelstiltskin 0 points 5 points (+5|-0) ago 

How has his diagnosis affected your life? If you knew, before you got pregnant that your baby would have this disorder, would you still get pregnant? You're doing a wonderful thing, man! Good luck to you!

0
4

[–] Salicaz [S] 0 points 4 points (+4|-0) ago 

His mother's family have it and since we were only dating a year or so, and she's a carrier not a sufferer I just had a "ah ok" opinion of it. She's much more knowledgeable in dealing with nephews.

Most of the effect on my life has been learning the nuances of it. For instance the hospital had a good tip about nappies (diapers). She remarked how toddlers now with bleed disorders are getting bruised bottoms a lot when they try to learn to walk compared to her day. It's simply down to nappies being thinner and more advanced now but less spongy.

Also that I may have to deal with hurtful accusations at me when people see an overly bruised boy, especially in this day and age.

0
2

[–] 5284877? 0 points 2 points (+2|-0) ago 

I hope you don't have to much trouble with the accusations thing. Hopefully schools etc will know it's a symptom of his condition etc.

Anyway, I think it's a pretty cool thing you are doing mate. Much kudos.

0
3

[–] un_salamandre 0 points 3 points (+3|-0) ago 

When did you find out about the disorder?

0
3

[–] Salicaz [S] 0 points 3 points (+3|-0) ago 

We knew that if we had a boy it was a 50/50 chance of having the faulty gene. So when he was born a blood sample was taken from the umbilical cord and sent by taxi to an nearby hospital to be tested. We were informed the next day.

0
1

[–] un_salamandre 0 points 1 points (+1|-0) ago 

That's brave of you to still have the child. I mean, in the sense that you decided you'd care for him anyways.

0
1

[–] BASH_SCRIPTS_FOR_YOU 0 points 1 points (+1|-0) ago 

I'm kinda late to this, but I liked the ad so I vectored it!

https://i.sli.mg/COXZWg.png

0
0

[–] Salicaz [S] 0 points 0 points (+0|-0) ago 

Wow thank you! I'll send it to my 10 year old nephew (who drew it) he'll be very happy.

0
1

[–] L3D 0 points 1 points (+1|-0) ago 

Unlucky genetic mutation just for your son, or is there prior history of hemophilia in the family?

0
1

[–] Salicaz [S] 0 points 1 points (+1|-0) ago 

It can happen spontaneously but no, this was inherited from his mother's side of the family.

load more comments ▼ (1 remaining)